Research
Past Conferences
Learn more about research and presentations from prior conferences and events. Leading medical researchers gather alongside patients and supporters for biennial conferences to share the latest research, provide updates from ongoing studies, and collaborate on future research and treatment pathways.
Published Articles
Read more about recent research findings including gene discoveries, patient experiences and common symptoms, as well as the work being done to identify treatments and cures. Articles linked here have been reviewed by the Association and our medical panel to accurately reflect the experiences of patients.