Terms of Use
Effective Date: June 2026
Welcome to the website of the Melorheostosis Association (“Organization,” “we,” “our,” or “us”). By accessing or using this website (“Site”), you agree to comply with and be bound by these Terms of Use (“Terms”). If you do not agree to these Terms, please do not use this Site.
1. About Our Organization
The Melorheostosis Association is a 501(c)(3) non-profit organization dedicated to finding the cause, treatments and cure for melorheostosis. Our focus is on promoting greater awareness and understanding of this progressive disease and its manifestations through education, research, communication and advocacy efforts on behalf of those affected by it as well as those dedicated to alleviating it.
Contact Information:
Organization Name: Melorheostosis Association
Email: info@melorheostosis.org
Website: www.melorheostosis.org
2. Use of This Website
This Site is intended to provide educational information, advocacy resources, community support, news, event information, fundraising opportunities, and related nonprofit services. You agree to use this Site only for lawful purposes and in accordance with these Terms.
You may not:
- Violate any applicable laws or regulations
- Attempt to gain unauthorized access to the Site or its systems
- Introduce viruses, malware, or harmful code
- Interfere with the operation or security of the Site
- Use the Site to harass, threaten, or harm others
- Misrepresent your identity or affiliation
We reserve the right to suspend or terminate access for users who violate these Terms.
3. Intellectual Property Rights
All content on this Site, including but not limited to text, graphics, logos, educational materials, downloadable resources, images, videos, and design elements, is owned by or licensed to Melorheostosis Association and protected by applicable intellectual property laws. Materials including research papers and publications are owned by their respective publishers and are linked to for educational purposes.
You may: View and print materials for personal, educational, or noncommercial use and share links to publicly available content.
You may not: reproduce or distribute materials for commercial purposes without written permission; modify or create derivative works from Site content, use our trademarks or logos without authorization
Requests for permission may be sent to: info@melorheostosis.org
4. Medical and Educational Disclaimer
The information provided on this Site is for informational and educational purposes only and is not intended as medical advice, diagnosis, or treatment.
Always seek the advice of a qualified healthcare provider regarding medical conditions or treatment decisions. Never disregard professional medical advice because of information obtained through this Site.
Use of this Site does not create a physician-patient relationship or any professional advisory relationship.
If you believe you are experiencing a medical emergency, contact emergency services immediately.
5. Donations and Financial Contributions
Donations made through this Site support the mission and programs of the Melorheostosis Association.
Unless otherwise stated: donations are voluntary, donations are generally nonrefundable, donors are responsible for verifying tax deductibility based on applicable law, payment processing may be handled through secure third-party providers
We are not responsible for errors or issues caused by third-party payment platforms.
6. User Submissions and Community Conduct
If the Site allows users to submit content, comments, forum posts, stories, or other materials (“User Content”), you agree that: you are responsible for your submissions, your content does not violate the rights of others, and your content is not unlawful, defamatory, abusive, threatening, discriminatory, or misleading
By submitting User Content, you grant the Melorheostosis Association a nonexclusive, royalty-free license to use, reproduce, display, and distribute such content in connection with our nonprofit mission and operations.
We reserve the right to remove content at our discretion.
7. Privacy
Your use of this Site is also governed by our Privacy Policy. Please review our Privacy Policy.
8. Third-Party Websites and Links
This Site may contain links to third-party websites, services, social media platforms, or external resources. These links are provided for convenience only. The Melorheostosis Association does not control and is not responsible for the content, policies, or practices of third-party websites. Accessing third-party websites is done at your own risk.
9. No Warranties
This Site and its content are provided “as is” and “as available” without warranties of any kind, either express or implied.
We do not guarantee that: the Site will always be available or uninterrupted; content is complete, accurate, or current; the Site is free from errors, viruses, or harmful components
10. Limitation of Liability
To the fullest extent permitted by law, the Melorheostosis Association, its directors, officers, employees, volunteers, affiliates, and partners shall not be liable for any direct, indirect, incidental, consequential, or special damages arising from or related to: use of or inability to use the Site; reliance on Site information; errors or omissions in content; technical issues or interruptions.
11. Indemnification
You agree to defend, indemnify, and hold harmless the Melorheostosis Association and its affiliates, directors, officers, employees, and volunteers from and against any claims, liabilities, damages, losses, or expenses arising from: your use of the Site; your violation of these Terms; your violation of any rights of another person or entity
12. Accessibility
The Melorheostosis Association is committed to making this Site accessible and inclusive for all users, including individuals with disabilities.
If you experience accessibility barriers, please contact us at info@melorheostosis.org.
13. Copyright Complaints
If you believe content on this Site infringes your copyright, please contact us with:
Your contact information
Description of the copyrighted work
URL or description of the allegedly infringing content
A statement that you believe the use is unauthorized
Send notices to: info@melorheostosis.org
14. Changes to These Terms
We may update these Terms from time to time without prior notice.
Changes become effective when posted on this page. Continued use of the Site after changes are posted constitutes acceptance of the revised Terms.
15. Contact Us
Questions regarding these Terms may be directed to: info@melorheostosis.org